My Chiari Journey

My Chiari Journey

Headaches aren’t normal?!? I had a pretty normal childhood growing up. I loved to play outside, climb trees, make mud pies, and do normal kid activities. I knew there were certain things I wasn’t too good at, such as catching a softball or baseball because I had this overwhelming fear that I would miss the … Continue reading

Still Fighting

Still Fighting

I’m still here, still fighting. The VA is giving me a very hard time regarding treatment for my Chiari Malformation. The Neurosurgery clinic refuses to see me because I’ve already had brain surgery and according to them I’m perfectly fine and my Chiari “LOOKS GREAT!” I mentioned that I thought I had cerebullar ptosis (slumping/sagging) … Continue reading

Long time, no post

Long time, no post

So it’s been a while since I have posted anything! Sorry to the ones that check for updates! I have been really busy making bracelets. I have been making purple zipper bracelets, and let me tell you… They are a big hit with the Chiari community! Everyone LOVES these bracelets! I sell them for $10 … Continue reading

The Countdown Begins!

The Countdown Begins!

I finally got my appointment letter from the VA today! I go to see Neurosurgery on December 18, 2012 @ 10 AM! I am both excited and scared! Excited because I hope that this Dr. will have a solution to make me feel better, and scared because I know nothing about this Dr. or his/her experience … Continue reading

My Beautiful Daughter

I am sooo happy to have her back…you have no idea what we have been through. She still isn’t fixed and may never be. Oh how I wish I could trade places with her! She doesn’t deserve this kind of life. Nobody does. But she is strong and I am always right here behind her. … Continue reading

Learning to let go!

Learning to let go!

No matter how well you plan things out, something always changes. One must learn to make the best of what they have without taking anything for granted!

I’m going crazy

I’m going crazy

I am really starting to believe I am losing my mind! I feel horrible all the time and it is taking its toll on my mental state. I hadn’t left my house in over a week until tonight. My boyfriend came home asking how much an ink cartridge cost. I told him about $20 or … Continue reading

When does it stop?

When does it stop?

Does it ever stop? Am I going to feel like this for the rest of my life? Why don’t my Drs believe me? What’s going to happen if I try to have kids? Will I even be able to have kids? Will having kids make my Chiari worse? Will I ever get better? How much … Continue reading

Looks can be deceiving

Looks can be deceiving

Just because I smile, laugh, and look okay doesn’t mean that I am okay. Looks can be deceiving! I have learned to live with pain on a day to day basis! Some days are good and the pain is minimal, but those days are very few and far between. My pain never goes away, I feel … Continue reading